Celebrating Our Pink Tie Partners

For the 12^th consecutive year, our Annual Pink Tie Ball united hundreds of Komen Orange County advocates and supporters to raise funds toward breast health services and groundbreaking cancer research. Every year, we seize this opportunity to highlight outstanding men and women who work alongside our organization. In 2018, Komen Orange County recognized five ‘Pink Tie Partners’, for their life-changing contributions to our cause. Get to know them better:

Photo credit: Carol Moore
From L to R: Bill Meehan, Dr. Allyson Brooks, Dr. Devon Lawson, Marica Pendjer and Pete Tzavalas

• Bill Meehan, managing partner at Rutan & Tucker, LLP a long-time supporter of Komen OC mission programs. Bill and his company have supported many of our fundraisers, including our Reds, Whites and Greens golf tournament, Pink Tie Ball and Race for the Cure.
• Allyson Brooks, Ginny Ueberroth executive medical director endowed chair of Hoag’s Women’s Health Institute. Hoag has been a great supporter of our mobile mammography and Latina outreach. Recently, we also partnered to host the first Spanish language cancer survivor conference in Orange County.
• Devon Lawson, metastatic breast cancer researcher and professor at the University of California, Irvine. She is co-leader of the UCI Breast Disease Oriented Team, which she helped establish to facilitate collaboration between UCI physicians, scientists, and local breast cancer advocates to promote an integrated environment for breast cancer research and clinical care at UCI. She also has been a speaker at the Komen OC Education Series for several years.
• Marica Pendjer, principal of Creative Collaborations, a boutique Orange County-based marketing and public relations firm. She served as Komen OC Board President from 2005 to 2007, was chair of the Race for the Cure and 2012 Pink Tie Ball Chair. Her work with Komen has earned her a Cameo Award, BMW Ultimate Drive Local Hero Award, Kellogg’s Rise and Shine Award for outstanding volunteerism, and recognition as Volunteer of the Year.
• Pete Tzavalas, senior vice president at Challenger, Gray & Christmas, Inc. He is actively working to bring Komen OC to the attention of businesses and encourage their financial support. His company has sponsored a table at the Pink Tie Ball for several years and brought a new mix of guests to support the cause.

Thanks to the efforts of our Pink Tie Partners and the 450+ guests in attendance, this year’s gala raised $617,000 to help fund our bold goal to reduce the current number of breast cancer deaths by 50 percent in the U.S. by 2026.  Since its inception in 2007, the Komen Orange County Pink Tie Ball has raised nearly $6 million and recognized a total of 84 Orange County businessmen and community leaders as Pink Tie Partners.

Photo credit: Antje Woolum Photography
2018 Pink Tie Ball Committee Members

The Pink Tie Ball is one of several fundraisers we organize each year to help fund breast cancer education and services such as free mammography screenings benefitting women in our community. Join us at our next big event, Race for the Cure, on Sunday, Sept. 23, at Fashion Island in Newport Beach. To take advantage of early-bird registration fee, sign up at www.komenoc.org/race.

Take a “Standup” for the Cure

With our beautiful Southern California weather, why not enjoy a day in the water while raising money to support local breast health education, services and research?

This Cinco de Mayo, come join us for the 7th Annual Standup for the Cure fundraiser at Newport Dunes. All proceeds from this family-friendly event will benefit Komen OC. Beginner and experienced paddlers, as well as “dry-foot” participants, are all welcomed. In addition to paddling clinics and races, there will be yoga classes, free breast cancer and skin cancer screenings provided by Kaiser Permanente, live music and a delicious lunch. There is also an opportunity to win great prizes through the raffle and silent auction.

We also look forward to the Sea of Pink, a ceremonial parade uniting the hundreds of paddlers in attendance, where we pay tribute to our bold and inspiring survivors.

STANDUP FOR THE CURE 2018
Saturday, May 5, 2018
8 a.m. – 2 p.m.
1131 Back Bay Drive
Newport Beach, CA, 92660

Schedule of Events:

• 8 a.m. Registration opens
• 9 a.m. Free standup paddleboard clinic and standup yoga clinic for all levels
• 9:30 a.m. Kaiser Permanente Health expo, breast and skin screenings opens
• 10 a.m. Hawaiian blessing of survivors and white dove release followed by the Sea of Pink, a ceremonial parade for all paddlers in attendance
• 10:30 a.m. Advanced (5K) and Intermediate (2.5K) races
• 11 a.m. Kids races and on land yoga class for all levels
• 11:30 a.m. Team relay races/Happy Hour begins with live music by Timo
• 12:30 p.m. Lunch served by KJ Catering
• 2:00 p.m. Prizes for races and top fundraisers are announced

In 2017, StandUp for the Cure raised more than $70,000 for Komen OC.

Regular registration is $35 and breast cancer survivor registration is $30. Participants are encouraged to bring their personal boards or rent them for the full day for easier access to the water. Sign up at https://www.crowdrise.com/registration/event_options/33434

We hope to see you there!

Making Our Voices Heard!

Komen Orange County, along with other Komen affiliates in California, advocate for non-partisan issues on key breast health and breast cancer-related bills at the local, state and national level. The Susan G. Komen for the Cure® Advocacy Alliance is the non-partisan voice for over 3.1 million breast cancers survivors and the people who love them. Our mission is to translate the Komen promise to end breast cancer forever into action at all levels of government to discover and deliver the cures.

On Komen Lobby Day, a delegation from Komen Orange County met with state lawmakers to raise a strong voice on two key breast health and breast cancer-related bills.  Our current advocacy priorities are as follows:

Limiting Out of Pocket Costs of Anticancer Medications – AB 1860

AB 1860, proposed by Assemblywoman Monique Limón (D-Santa Barbara), will ensure that oral anticancer medication – which is preferred by most patients or in many cases, the only form of treatment available – are affordable and covered by health plans or insurance.  Specifically, this bill would permanently require health care service plans and health insurer to limit patient out-of-pocket costs to $200 per filled prescription. The development of oral chemotherapy has allowed cancer patients to live a more normal and regular life while undergoing treatment, but currently, the high cost of this type of medication deters many patients from receiving the treatment they need in order to fight their disease.

Removing Arbitrary Cap for Breast (and Cervical) Cancer Treatment – SB 945
Senator Toni Atkins (D-San Diego) will introduce SB 945, a legislation that seeks to remove arbitrary caps in the Breast and Cervical Cancer Treatment Program for low-income, underinsured, or uninsured women in California. Currently, the program caps treatment for breast cancer at 18 months, regardless of medical need. We believe that arbitrarily stopping cancer treatment for our most vulnerable women is risky and potentially life-threatening. SB 945 would remove those caps and allow the program to continue to provide treatment for cancer patients as long as necessary.

Advocates from Komen Orange County lobbying for breast health care for all.
L to R: Director of Mission Programs Ambrocia Lopez, Board Member Dr. Devera Heard,  and Community Resource Advocate LarLeslie McDaniel.

Komen is proud to support these two bills that are critical to ensure breast cancer patients, especially in Orange County, are getting the treatment they need.

To learn more about our Advocacy Alliance, click here.

 

Rewriting the Story of African Americans and Breast Cancer

February is Black History Month. Did you know that African American women have a survival rate that’s 41 percent lower than their counterparts? The same research indicates that African American women are often diagnosed at later stages, sometimes with more aggressive forms of cancer and at younger ages.

Susan G. Komen has pledged to ensure that this group of women are empowered with the information and tools they need to take charge of their own health and serve as ambassadors in their local communities.

We sat down with Komen OC’s LarLeslie S. McDaniel, Circle of Promise Community Resource Advocate, to discuss this alarming trend and Komen’s initiative to change this reality.

LarLeslie McDaniel

1) Can you explain why there is an immense disparity between African American women and their counterparts in diagnosis/survival of breast cancer?

There is no simple answer to this question as there are many contributing factors; some of which may include:

• An increasing trend towards breast cancer incidence and late stage diagnosis
• Fears around screening and diagnosis
• Loss to follow-up (not receiving timely medical follow-up and/or not completing treatment continuum of care)
• Lack of trust in the medical system
• Lack of knowledge of resources and medical recommendations
• Uninsured or underinsured without access to high quality medical treatment and/or screening services.

2) What are some general tips to reduce the risk?

Early detection is key to survival. If diagnosed early, the 5-year relative survival rate for breast cancer is 99%. Some risk factors can be controlled and others can’t. The two greatest risk factors for breast cancer are being female and getting older, which cannot be controlled.  It is important to note that while “risk factors” are associated with an increase chance of getting breast cancer, they do not cause breast cancer. These are Komen’s recommendations:

• “Know your risk.” Learn about your family health history and talk to your health care provider about your own personal risk.
• “Get Screened.” Ask your doctor which screening tests are right for you if you are at a higher risk.
  • Have a mammogram every year starting at age 40, if you are at average risk.
  • Have a clinical breast exam at least every 3 years starting at age 20, and every year starting at age 40.
• “Know what is Normal for You.” Know how your breasts look and feel and report any changes to your health care provider right away.
• “Make Healthy Lifestyle Choices.” Maintain a healthy weight. Exercise regularly. Limit alcohol intake and menopausal hormone use and breastfeed, if you can.

3) What is the Circle of Promise?

The Circle of Promise is a California Initiative created by all Susan G. Komen affiliates in the state of California, including Orange County, to address breast cancer disparities at all levels, specifically targeting African American women age 40 and older.  The goal of the initiative is to empower women with the knowledge and resources to enter and seamlessly move through a quality, culturally competent system of health care; to get information, get support and gain access to services that could save their lives.

4) What local resources are available for African-Americans in Orange County if they are uninsured or underinsured, and in need of mammography screening and other resources?

Komen OC can help. Our network partners with health care agencies, hospitals, various community partners and companies to provide all the possible resources to support women, and their families, through their breast cancer experience. You can find resources for mammography, support groups, financial assistance, and local events among others.

We encourage you to help us rewrite the story. The COP Partnership meets bi-monthly for members to learn more about community partnerships and increase breast cancer awareness in the African American community.  The next meeting is on Tuesday, March 27, at 7 p.m. at the Komen OC Affiliate office on 2817 McGaw Ave. Irvine, CA 92614.

Help us rewrite the story of African Americans and breast cancer by joining the Circle of Promise. You can reach LarLeslie McDaniel at 714-957-9157 Ext. 29 or lmcdaniel@komenoc.org.

Happy New Year and New You

Thanks to our supporters and generous donors, we wrapped up 2017 with a bang. Through our signature events like the Race for the Cure and Pink Tie Ball, and through individual contributions, we raise funds throughout the year that enable women, right here in Orange County, to detect and survive breast cancer. To date, we are proud to say that we have invested more than $40 million in education, diagnosis, treatment and support programs that serve uninsured or underinsured residents in our local community.

In 2017, we:

• provided 8,307 free clinical breast exams to those who otherwise would not have received them.
• provided 7,007 free mammograms to uninsured and underserved women.
• detected breast cancer in 64 women, who would otherwise not have known about their cancer.
• supported 86 women with financial assistance so they can finish their treatment.
• reached 67,617 people through the year-long breast health education series.

As we look forward to 2018, we remain committed to the vision of a world without breast cancer and will continue to strive toward our Bold Goal of reducing the current number of breast cancer deaths by 50 percent in the U.S. by 2026. Here are some of the steps we’re taking to reach this objective:

Nationally, research on metastatic breast cancer (MBC) remains a priority for the Komen organization. Every 13 minutes, one woman or man dies from MBC, which causes nearly all of the 40,000-plus breast cancer deaths each year in the United States. To date, Komen has spent more than $166 million in over 400 research grants and more than 40 clinical trials focused on metastatic breast cancer. We won’t stop until we find a cure!

Locally, we’re excited for our partnership with Cal State Fullerton, working together to identify ways to enhance patient navigation services in Orange County. The goal is to ensure that breast cancer patients receive support all the way through treatment. More info to come in the upcoming months.

Individually, we invite you to Be More Than Pink and make a difference by being part of upcoming Komen events by attending, supporting, fundraising and/or volunteering! Visit the Komen’s events page regularly to get the latest updates on where we are in the community.

Local Services + Research = Lives Saved

Earlier this month, more than 250 supporters gathered at The Westin South Coast for Komen OC’s annual Grants Award Breakfast, where $649,966 was awarded to eight Orange County organizations that provide breast health care services to men and women in the community.

2018 Komen OC grant recipients. From L to R: Komen’s Director of Mission Services Ambrocia Lopez; Komen Board member Dr. January Lopez; YMCA of North Orange County Past President Rosamaria Gomez-Amaro; Vietnamese American Cancer Foundation Executive Director Becky Nguyen; The Cambodian Family Community Center Executive Director Vattana Peong; Share Ourselves Nurse Clinic Manager Kristin Almieri; Planned Parenthood of Orange and San Bernardino Counties Vice President of Development Laurie Rayner; Nhan Hoa Comprehensive Health Care Clinic Boardmember Duc Vuong; AltaMed Health Services Nurse Practitioner Deborah Binning; and at Breast Cancer Solutions Executive Director Jennifer Anderson.

The 2018 community grants recipients and their breast health programs are:

• AltaMed Health Services
• Breast Cancer Solutions
• Nhan Hoa Comprehensive Health Care Clinic
• Planned Parenthood of Orange and San Bernardino Counties
• Share Our Selves Corporation
• The Cambodian Family Community Center
• Vietnamese American Cancer Foundation
• YWCA of North Orange County

The event highlights include a keynote by Komen Young Investigator Dr. Adam Soloff, a research health scientist at the Ralph H. Johnson VA Medical Center in Charleston, S.C. Dr. Soloff shared about his compelling research on the development of a novel breast cancer vaccine and new drug to block cancer cells from hiding in the body’s immune system.  If successful, this treatment strategy could not only kill existing breast cancer cells, but also produce long-term immune memory that may prevent breast cancer recurrence.

Dr. Adam Soloff presents his research about the development of a novel breast cancer vaccine at the Komen OC Grants Award Breakfast.

Additionally, attendees heard from a very special Komen-funded patient navigator, Cindy Phou, from the Cambodian Family Community Center. At the young age of 23, Cindy shared her story about how she is making a difference in the life of Angkearoth, a 44-year-old breast cancer patient, wife, mother and immigrant from Cambodia, who spoke very little English.

The inspirational event concluded with the presentation of the “More Than Pink Award” to two of Komen OC’s partners, Kaiser Permanente and Knott’s Berry Farm, for their loyal contributions to Komen OC throughout the years.

Find out more about Komen OC’s 2018 grant recipients here. Please note that grant recipients do not provide any grant funds directly to individuals. For information on how to navigate an individual for diagnostic breast health services through this program, click here or call (714) 957-9157.

A Bold Fundraising and Awareness Campaign

Recently, actress Julia Louis-Dreyfus announced on Twitter that she has been diagnosed with breast cancer. “One in eight women will develop some type of breast cancer in their lifetime,” she posted, “Today I’m the one.”

October is Breast Cancer Awareness Month. Almost everyone has been connected to breast cancer in some way and knows the devastating impact this disease can have on their loved one and family. At this year’s Race for the Cure, Komen Orange County Executive Director Lisa Wolter announced that the national Komen organization will focus its 2017 research funding of $30.7 million on metastatic breast cancer, the most lethal form and stage of breast cancer.

Additionally, in 2018, 100 percent of new grants for Komen’s Young Investigators Program, which invites young researchers to focus on breast cancer issues, will be focused on metastatic breast cancer and treatment resistance that leads to it.

Metastatic breast cancer – which is breast cancer that has spread to other parts of the body like the brain, liver, bones or lungs – is responsible for almost all of the nation’s 40,000 annual breast cancer deaths. Today, more than 154,000 people are living with metastatic breast cancer in the U.S., a statistic that needs to be lowered. By targeting metastatic disease, Komen hopes to reduce breast cancer deaths dramatically in the U.S.

Making a Personal Impact

For the first time, Komen is giving you, members of the public, the opportunity to directly fund specific research by participating in a crowdfunding initiative on Komen’s national website, komen.org. Komen has highlighted four pioneering researchers, who are dedicated to making discoveries that will ultimately improve outcomes for patients suffering from metastatic breast cancer, and encourage donations to their specific grants.

You can also make an impact locally, which means your money stays right here in our community to help support treatment, screening and education. Help us reach our 2017 Komen Orange County Race for the Cure fundraising goal to reach $2 million by the end of October. To make a contribution, visit www.komenoc.org/race.

Giving the Gift of Breast Health Care for Mothers and Daughters

At the age of 26, Veronica was not prepared for a breast cancer diagnosis and everything that come along with it.  Neither was her mom. Veronica was less than one year away from graduating from Cal State, Fullerton when she noticed that her nipple was inverted. Her mother was not worried because her sister had the same breast abnormality. A few months later Veronica felt a lump near the areola on the same breast.  Now she was scared.

Uninsured at the time, she went to the only place she knew that might be able to help her, Planned Parenthood. She was then referred to Breastlink, who diagnosed her with Her2 positive breast cancer that had spread into her lymph nodes. She was told that chemotherapy would damage her fertility.  At 26, Veronica hadn’t even thought about having children yet!

Suddenly, Veronica went from being a normal college student to fighting for her life with the immense stress of how to pay for all the cares. Emotionally, she wasn’t coping well. Neither was her Mom. Veronica could not handle the weight of her mother’s sorrow on top of her own emotional distress. Following her doctor’s advice, Veronica called Susan G. Komen Orange County.

Veronica Mora and her mother

At Komen Orange County, Veronica and her mom received a warm welcome from Cafecitos Hope, a Spanish-speaking comfort support group for Latina breast cancer survivors. That’s when Veronica realized how her diagnostic procedures were paid. It was Susan G. Komen Orange County who had silently stepped in and paid for her first ultrasound and needle biopsy that diagnosed her cancer at Breastlink. It was Komen who had offered her a free wig when her hair fell out. It was Komen who had referred her to free local mental health services. And, it was Komen who was helping her mother learn to cope with her sorrow.

Susan G. Komen Orange County was able to make an impact on Veronica and her mother’s lives because of YOUR support. Thanks to you, Veronica will be graduating this month from Cal State Fullerton! Help us honoring other moms and loved ones on Mother’s Day by giving the gift of breast health care for all women in need throughout Orange County.

There are many ways you can do so:

• Please consider making a donation, by clicking here.
• Join our celebration by using Facebook’s custom “Mom & Me” profile picture filter on your Facebook page and tell us your favorite #MomAndMe moment. To learn more, click here

Mom & Me Facebook filter

• Help spread the word with your family, friends and professional network about upcoming free mammograms screenings. To be eligible, women must be 40 years of age or older, have low income, have no or limited insurance, not be receiving these services through Medi-Cal or another government-sponsored program, live in California and not have had a mammogram in the past 12 months. It is also mandatory to sign up in advance. Below, you will find a list of sign-up events and onsite mammography screening events. For more information, contact Ambrocia Lopez at 714-957-9157 ext. 25 or via email at alopez@komenoc.org.

MAMMOGRAPHY SIGN-UP EVENTS:

• May 11, 2-5 p.m. at Northgate Gonzalez Market, 770 S Harbor Blvd, Santa Ana, CA 92704
• May 13, 10 a.m.-2 p.m. at Northgate Gonzalez Market Store, 6991 Lincoln Avenue, Buena Park, CA 90620
• May 16, 2-6 p.m. at Northgate Gonzalez Market Store, 6991 Lincoln Avenue, Buena Park, CA 90620
• May 18, 2-6 p.m. at Northgate Gonzalez Market, 2030 East Lincoln Avenue, Anaheim, CA 92806
• May 20, 10 a.m.-2 p.m. at Northgate Gonzalez Market, 2030 East Lincoln Avenue, Anaheim, CA 92806

ONSITE MAMMOGRAPHY SCREENING EVENTS:

• May 15, 9 a.m.-12 p.m. at Northgate Gonzalez Market , 770 S Harbor Blvd, Santa Ana, CA 92704
• May 22, 9 a.m.-12 p.m. at Northgate Gonzalez Market Store , 6991 Lincoln Avenue, Buena Park, CA 90620
• May 26, 9 a.m.-12 p.m. at Northgate Gonzalez Market Store, 2030 East Lincoln Avenue, Anaheim, CA 92806

Help us bring hope to mothers and daughters fighting breast cancer!

Knott’s Screams Against Breast Cancer

For the fourth consecutive year, Knott’s Berry Farm partnered with Susan G. Komen Orange County to raise funds for breast cancer awareness and services for the local community during Knott’s for the Cure from January 9 to March 5, 2017.

In 2017, Knott’s and Komen Orange County raised more than $108,000 through the purchase of “pink” tickets, season passes and select merchandise such as “Pink” Knott’s t-shirts sold in the park. With the cost of a mammogram evaluated at $125, Knott’s for the Cure will benefit more than 800 Orange county residents who are underinsured or underserved!

Cherie Whyte, director of communications for Knott’s Berry Farm, presents a check to Jessica Rhee, Board member, Susan G. Komen Orange County

One of the campaign’s highlights was a special event on World Cancer Day (February 4) to honor and celebrate survivors and their families whose lives have been affected by breast cancer. Knott’s and Komen OC organized a #ScreamAgainstBreastCancer Facebook contest for a chance to participate in the event featuring actress Brenda Song from CBS’s “Pure Genius,” who attended in support of her mother currently battling breast cancer. Winners of the contest screamed against all of the challenges and pain but most importantly celebrated their victories and the great triumph of overcoming breast cancer while suspended over 252-feet in the air, at the highest point of Orange County’s tallest free-standing ride, Knott’s Supreme Scream.

Brenda Song and Peanuts’ friends Lucy and Frieda

Knott’s Berry Farm also teamed up with Komen Orange County on February 22 to provide free screening mammograms, clinical breast exams and education to Knott’s employees and local uninsured and under-insured women (and men) via the Knott’s sponsored Alinea mobile mammography van. Local women who received free mammograms were also gifted free admission to the park.

Alinea Mobile Mammography Van and Snoopy

Additionally, on Valentine’s Day, the Supreme Scream ride, towering over 312-feet in the air, turned pink and glowed for miles in honor of the Knott’s for the Cure program. Supreme Scream along with the famous Calico Mine Ride, shined across the Buena Park skyline each night for the remaining duration of the promotion.

Since 2013, the partnership with Komen Orange County has collectively raised close to $500,000 for the organization. Knott’s Berry Farm’s parent company, Cedar Fair Entertainment, has donated nearly $1 million to Susan G. Komen in the last 5 years. The proceeds raised during Knott’s for the Cure help provide underserviced women and men in Orange County with access to breast health care and services.

We’re Still on a Mission: Sneak Peek into 2017

In 2016, we celebrated our 25^th anniversary. Looking back 25 years, people did not talk about breast cancer although the mortality rate was much higher. Between 1990 and 2013, breast cancer mortality decreased by 37%, the equivalent of nearly 250,000 lives saved. This is incredible progress, but there is more work to be done. Susan G. Komen recently announced its Bold Goal, to cut the mortality rate nationwide by 50 percent in the next decade.

We’re taking on numerous initiatives to reach our Bold Goal, from our signature fundraising events to community outreach programs, and building relationships with local partners. Here are several we look forward to in 2017:

• Knott’s Berry Farm for the Cure: For the fourth consecutive year, Knott’s Berry Farm will turn pink for several weeks from January to March, in support of breast cancer. Our good friend Snoopy will help us raise funds through the sale of Knott’s Pink Tickets and Knott’s for the Cure Pink merchandise.

• Circle of Promise: While African American women are less likely than Caucasian women to be diagnosed with breast cancer, the mortality rate in Orange County is 41 percent higher. In February, we’ll host a Circle of Promise Day to combat these statistics by hosting a roundtable with influent community leaders.
• Research Symposium: In February, Komen Orange County will unite leading breast health scientists and specialists who will share their knowledge of breast cancer.
• Pink Tie Ball: In the past ten years, 4,500+ guests have attended our Pink Tie Ball, helping us raise $3.6 million. In May, we will honor seven new Pink Tie Guys and celebrate their efforts in the community toward the fight against breast cancer.

• OC Marathon: On May 7, we’ll be onsite to cheer on and hand out water to the hard working runners. Look for our booth at the finish line, where you can also learn about breast health services!
• Race for the Cure: Over the past 25 years, 307,000+ people have participated in the Race for the Cure and helped us raised more than $34.5 million. We hope to see you at the starting line!

As you can see, 2017 will be a busy year for us! We hope you’ll join us at one or more of our events and in our mission to fight breast cancer.