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Take a “Standup” for the Cure

With our beautiful Southern California weather, why not enjoy a day in the water while raising money to support local breast health education, services and research?

This Cinco de Mayo, come join us for the 7th Annual Standup for the Cure fundraiser at Newport Dunes. All proceeds from this family-friendly event will benefit Komen OC. Beginner and experienced paddlers, as well as “dry-foot” participants, are all welcomed. In addition to paddling clinics and races, there will be yoga classes, free breast cancer and skin cancer screenings provided by Kaiser Permanente, live music and a delicious lunch. There is also an opportunity to win great prizes through the raffle and silent auction.

We also look forward to the Sea of Pink, a ceremonial parade uniting the hundreds of paddlers in attendance, where we pay tribute to our bold and inspiring survivors.

Standup for the Cure poster

STANDUP FOR THE CURE 2018
Saturday, May 5, 2018
8 a.m. – 2 p.m.
1131 Back Bay Drive
Newport Beach, CA, 92660

Schedule of Events:

  • 8 a.m. Registration opens
  • 9 a.m. Free standup paddleboard clinic and standup yoga clinic for all levels
  • 9:30 a.m. Kaiser Permanente Health expo, breast and skin screenings opens
  • 10 a.m. Hawaiian blessing of survivors and white dove release followed by the Sea of Pink, a ceremonial parade for all paddlers in attendance
  • 10:30 a.m. Advanced (5K) and Intermediate (2.5K) races
  • 11 a.m. Kids races and on land yoga class for all levels
  • 11:30 a.m. Team relay races/Happy Hour begins with live music by Timo
  • 12:30 p.m. Lunch served by KJ Catering
  • 2:00 p.m. Prizes for races and top fundraisers are announced
Women paddling

In 2017, StandUp for the Cure raised more than $70,000 for Komen OC.

Regular registration is $35 and breast cancer survivor registration is $30. Participants are encouraged to bring their personal boards or rent them for the full day for easier access to the water. Sign up at https://www.crowdrise.com/registration/event_options/33434

We hope to see you there!

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Making Our Voices Heard!

Komen Orange County, along with other Komen affiliates in California, advocate for non-partisan issues on key breast health and breast cancer-related bills at the local, state and national level. The Susan G. Komen for the Cure® Advocacy Alliance is the non-partisan voice for over 3.1 million breast cancers survivors and the people who love them. Our mission is to translate the Komen promise to end breast cancer forever into action at all levels of government to discover and deliver the cures.

On Komen Lobby Day, a delegation from Komen Orange County met with state lawmakers to raise a strong voice on two key breast health and breast cancer-related bills.  Our current advocacy priorities are as follows:

Limiting Out of Pocket Costs of Anticancer Medications AB 1860

AB 1860, proposed by Assemblywoman Monique Limón (D-Santa Barbara), will ensure that oral anticancer medication – which is preferred by most patients or in many cases, the only form of treatment available – are affordable and covered by health plans or insurance.  Specifically, this bill would permanently require health care service plans and health insurer to limit patient out-of-pocket costs to $200 per filled prescription. The development of oral chemotherapy has allowed cancer patients to live a more normal and regular life while undergoing treatment, but currently, the high cost of this type of medication deters many patients from receiving the treatment they need in order to fight their disease.

Removing Arbitrary Cap for Breast (and Cervical) Cancer Treatment SB 945
Senator Toni Atkins (D-San Diego) will introduce SB 945, a legislation that seeks to remove arbitrary caps in the Breast and Cervical Cancer Treatment Program for low-income, underinsured, or uninsured women in California. Currently, the program caps treatment for breast cancer at 18 months, regardless of medical need. We believe that arbitrarily stopping cancer treatment for our most vulnerable women is risky and potentially life-threatening. SB 945 would remove those caps and allow the program to continue to provide treatment for cancer patients as long as necessary.

Advocates from Komen Orange County lobbying for breast health care for all.  L to R: Director of Mission Programs Ambrocia Lopez,  Board Member Dr. Devera Heard, and  Community Resource Advocate LarLeslie McDaniel.

Advocates from Komen Orange County lobbying for breast health care for all.
L to R: Director of Mission Programs Ambrocia Lopez, Board Member Dr. Devera Heard,  and Community Resource Advocate LarLeslie McDaniel.

Komen is proud to support these two bills that are critical to ensure breast cancer patients, especially in Orange County, are getting the treatment they need.

To learn more about our Advocacy Alliance, click here.

 

Rewriting the Story of African Americans and Breast Cancer

February is Black History Month. Did you know that African American women have a survival rate that’s 41 percent lower than their counterparts? The same research indicates that African American women are often diagnosed at later stages, sometimes with more aggressive forms of cancer and at younger ages.

Susan G. Komen has pledged to ensure that this group of women are empowered with the information and tools they need to take charge of their own health and serve as ambassadors in their local communities.

We sat down with Komen OC’s LarLeslie S. McDaniel, Circle of Promise Community Resource Advocate, to discuss this alarming trend and Komen’s initiative to change this reality.

LarLeslie McDaniel

1) Can you explain why there is an immense disparity between African American women and their counterparts in diagnosis/survival of breast cancer?

There is no simple answer to this question as there are many contributing factors; some of which may include:

  • An increasing trend towards breast cancer incidence and late stage diagnosis
  • Fears around screening and diagnosis
  • Loss to follow-up (not receiving timely medical follow-up and/or not completing treatment continuum of care)
  • Lack of trust in the medical system
  • Lack of knowledge of resources and medical recommendations
  • Uninsured or underinsured without access to high quality medical treatment and/or screening services.

2) What are some general tips to reduce the risk?

Early detection is key to survival. If diagnosed early, the 5-year relative survival rate for breast cancer is 99%. Some risk factors can be controlled and others can’t. The two greatest risk factors for breast cancer are being female and getting older, which cannot be controlled.  It is important to note that while “risk factors” are associated with an increase chance of getting breast cancer, they do not cause breast cancer. These are Komen’s recommendations:

  • Know your risk.” Learn about your family health history and talk to your health care provider about your own personal risk.
  • Get Screened. Ask your doctor which screening tests are right for you if you are at a higher risk.
    • Have a mammogram every year starting at age 40, if you are at average risk.
    • Have a clinical breast exam at least every 3 years starting at age 20, and every year starting at age 40.
  • “Know what is Normal for You.” Know how your breasts look and feel and report any changes to your health care provider right away.
  • Make Healthy Lifestyle Choices.” Maintain a healthy weight. Exercise regularly. Limit alcohol intake and menopausal hormone use and breastfeed, if you can.

3) What is the Circle of Promise?

The Circle of Promise is a California Initiative created by all Susan G. Komen affiliates in the state of California, including Orange County, to address breast cancer disparities at all levels, specifically targeting African American women age 40 and older.  The goal of the initiative is to empower women with the knowledge and resources to enter and seamlessly move through a quality, culturally competent system of health care; to get information, get support and gain access to services that could save their lives.

4) What local resources are available for African-Americans in Orange County if they are uninsured or underinsured, and in need of mammography screening and other resources?

Komen OC can help. Our network partners with health care agencies, hospitals, various community partners and companies to provide all the possible resources to support women, and their families, through their breast cancer experience. You can find resources for mammography, support groups, financial assistance, and local events among others.

We encourage you to help us rewrite the story. The COP Partnership meets bi-monthly for members to learn more about community partnerships and increase breast cancer awareness in the African American community.  The next meeting is on Tuesday, March 27, at 7 p.m. at the Komen OC Affiliate office on 2817 McGaw Ave. Irvine, CA 92614.

Help us rewrite the story of African Americans and breast cancer by joining the Circle of Promise. You can reach LarLeslie McDaniel at 714-957-9157 Ext. 29 or lmcdaniel@komenoc.org.

Giving the Gift of Breast Health Care for Mothers and Daughters

At the age of 26, Veronica was not prepared for a breast cancer diagnosis and everything that come along with it.  Neither was her mom. Veronica was less than one year away from graduating from Cal State, Fullerton when she noticed that her nipple was inverted. Her mother was not worried because her sister had the same breast abnormality. A few months later Veronica felt a lump near the areola on the same breast.  Now she was scared.

Uninsured at the time, she went to the only place she knew that might be able to help her, Planned Parenthood. She was then referred to Breastlink, who diagnosed her with Her2 positive breast cancer that had spread into her lymph nodes. She was told that chemotherapy would damage her fertility.  At 26, Veronica hadn’t even thought about having children yet!

Suddenly, Veronica went from being a normal college student to fighting for her life with the immense stress of how to pay for all the cares. Emotionally, she wasn’t coping well. Neither was her Mom. Veronica could not handle the weight of her mother’s sorrow on top of her own emotional distress. Following her doctor’s advice, Veronica called Susan G. Komen Orange County.

Veronica Mora and her mother

Veronica Mora and her mother

At Komen Orange County, Veronica and her mom received a warm welcome from Cafecitos Hope, a Spanish-speaking comfort support group for Latina breast cancer survivors. That’s when Veronica realized how her diagnostic procedures were paid. It was Susan G. Komen Orange County who had silently stepped in and paid for her first ultrasound and needle biopsy that diagnosed her cancer at Breastlink. It was Komen who had offered her a free wig when her hair fell out. It was Komen who had referred her to free local mental health services. And, it was Komen who was helping her mother learn to cope with her sorrow.

Susan G. Komen Orange County was able to make an impact on Veronica and her mother’s lives because of YOUR support. Thanks to you, Veronica will be graduating this month from Cal State Fullerton! Help us honoring other moms and loved ones on Mother’s Day by giving the gift of breast health care for all women in need throughout Orange County.

There are many ways you can do so:

  • Please consider making a donation, by clicking here.
  • Join our celebration by using Facebook’s custom “Mom & Me” profile picture filter on your Facebook page and tell us your favorite #MomAndMe moment. To learn more, click here
Mom & Me Facebook filter

Mom & Me Facebook filter

  • Help spread the word with your family, friends and professional network about upcoming free mammograms screenings. To be eligible, women must be 40 years of age or older, have low income, have no or limited insurance, not be receiving these services through Medi-Cal or another government-sponsored program, live in California and not have had a mammogram in the past 12 months. It is also mandatory to sign up in advance. Below, you will find a list of sign-up events and onsite mammography screening events. For more information, contact Ambrocia Lopez at 714-957-9157 ext. 25 or via email at alopez@komenoc.org.

MAMMOGRAPHY SIGN-UP EVENTS:

  • May 11, 2-5 p.m. at Northgate Gonzalez Market, 770 S Harbor Blvd, Santa Ana, CA 92704
  • May 13, 10 a.m.-2 p.m. at Northgate Gonzalez Market Store, 6991 Lincoln Avenue, Buena Park, CA 90620
  • May 16, 2-6 p.m. at Northgate Gonzalez Market Store, 6991 Lincoln Avenue, Buena Park, CA 90620
  • May 18, 2-6 p.m. at Northgate Gonzalez Market, 2030 East Lincoln Avenue, Anaheim, CA 92806
  • May 20, 10 a.m.-2 p.m. at Northgate Gonzalez Market, 2030 East Lincoln Avenue, Anaheim, CA 92806

ONSITE MAMMOGRAPHY SCREENING EVENTS:

  • May 15, 9 a.m.-12 p.m. at Northgate Gonzalez Market , 770 S Harbor Blvd, Santa Ana, CA 92704
  • May 22, 9 a.m.-12 p.m. at Northgate Gonzalez Market Store , 6991 Lincoln Avenue, Buena Park, CA 90620
  • May 26, 9 a.m.-12 p.m. at Northgate Gonzalez Market Store, 2030 East Lincoln Avenue, Anaheim, CA 92806

Help us bring hope to mothers and daughters fighting breast cancer!

Knott’s Screams Against Breast Cancer

For the fourth consecutive year, Knott’s Berry Farm partnered with Susan G. Komen Orange County to raise funds for breast cancer awareness and services for the local community during Knott’s for the Cure from January 9 to March 5, 2017.

In 2017, Knott’s and Komen Orange County raised more than $108,000 through the purchase of “pink” tickets, season passes and select merchandise such as “Pink” Knott’s t-shirts sold in the park. With the cost of a mammogram evaluated at $125, Knott’s for the Cure will benefit more than 800 Orange county residents who are underinsured or underserved!

Cherie Whyte, director of communications for Knott’s Berry Farm, presents a check to Jessica Rhee, Board member, Susan G. Komen Orange County

Cherie Whyte, director of communications for Knott’s Berry Farm, presents a check to Jessica Rhee, Board member, Susan G. Komen Orange County

One of the campaign’s highlights was a special event on World Cancer Day (February 4) to honor and celebrate survivors and their families whose lives have been affected by breast cancer. Knott’s and Komen OC organized a #ScreamAgainstBreastCancer Facebook contest for a chance to participate in the event featuring actress Brenda Song from CBS’s “Pure Genius,” who attended in support of her mother currently battling breast cancer. Winners of the contest screamed against all of the challenges and pain but most importantly celebrated their victories and the great triumph of overcoming breast cancer while suspended over 252-feet in the air, at the highest point of Orange County’s tallest free-standing ride, Knott’s Supreme Scream.

Brenda Song holding hands with Peanuts characters Lucy and Frieda

Brenda Song and Peanuts’ friends Lucy and Frieda

Knott’s Berry Farm also teamed up with Komen Orange County on February 22 to provide free screening mammograms, clinical breast exams and education to Knott’s employees and local uninsured and under-insured women (and men) via the Knott’s sponsored Alinea mobile mammography van. Local women who received free mammograms were also gifted free admission to the park.

Alinea Mobile Mammography Van and Snoopy

Alinea Mobile Mammography Van and Snoopy

Additionally, on Valentine’s Day, the Supreme Scream ride, towering over 312-feet in the air, turned pink and glowed for miles in honor of the Knott’s for the Cure program. Supreme Scream along with the famous Calico Mine Ride, shined across the Buena Park skyline each night for the remaining duration of the promotion.

Since 2013, the partnership with Komen Orange County has collectively raised close to $500,000 for the organization. Knott’s Berry Farm’s parent company, Cedar Fair Entertainment, has donated nearly $1 million to Susan G. Komen in the last 5 years. The proceeds raised during Knott’s for the Cure help provide underserviced women and men in Orange County with access to breast health care and services.

In Honor of Black History Month, Help Us Rewrite the Story

In October 2016, Susan G. Komen announced its bold goal to cut the nation’s 40,000 breast cancer deaths by half in the next decade. In order to reach this ambitious goal, Komen’s efforts will be twofold:

  • Extend breast health services to underserved and uninsured populations
  • Enhance research focus on the most aggressive forms of breast cancers

Black History Month

Did you know that African American women have a survival rate that’s 41 percent lower –sometimes even 74% in certain metropolitan area- than white women? It is about time we address this issue!

Nationwide, Komen launched the program Health Equity for All, subsidized by a $27 Million grant from Fund II Foundation. This initiative will initially target 10 metropolitan areas where mortality rates and late-stage diagnosis of African-American women are the highest. The goal: to reduce the mortality gap by 25 percent within five years in Memphis, St. Louis, Dallas, Los Angeles, Virginia Beach, Atlanta, Chicago, Houston, Washington, D.C. and Philadelphia. Baltimore and Detroit are also high-priority areas and will be included in the program over the next year.

Statewide, The Susan G. Komen Circle of Promise California initiative was launched in 2014 by seven California Susan G. Komen Affiliates to provide African American women with education and breast cancer screening. On February 27, Circle of Promise will be hosting a roundtable for a much-needed discussion on the breast health of African-American Women in our community. We are thrilled to have Shyrea Thompson, Senior Manager, Special Initiatives at Susan G. Komen as a keynote speaker. You can attend this event by signing up here.

2017 roundtable invitation

Locally, you can also make a difference by joining the Circle, and becoming part of a movement that gives all African American women access to breast health information, services and support that can save lives.

Overall, there are many ways you can support us:

  • First, speak up. Talk about it.
  • Second, make the promise to take care of your own breast health and take action, such as:
    • Talking to your health care provider about your own personal risk
    • Having a mammogram every year starting at age 40 if you are at average risk
    • Knowing how your breasts look and feel and report any changes to your health care provider
    • Adopting a healthy lifestyle to help reduce your risk of breast cancer

Help us empower all African-American women to get information, get support and gain access to services that could save their lives. Rewrite the story. Change history. Get involved today!

Giving Thanks by Giving Back

As we enter giving season, we at Susan G. Komen Orange County, in partnership with the YWCA of North Orange County, wanted to do something extra special to show our appreciation for the community.  So on Saturday morning, we visited the Loaves and Fishes Soup Kitchen at St. Joseph Church and School in Santa Ana with our mobile mammography unit to provide access to care for 37 uninsured and high-risk Orange County women. We had a successful screening – it was the most women we’ve screened at one time.

loaves and fishes

Participants stand in line for their free mammograms.

Mammograms are vital in detecting breast cancer in its early stages and without free breast health screenings for women and men in need, knowing whether they have breast cancer or not would be impossible. Our screening event was held in conjunction with the weekly soup kitchen operations, which serves meals to nearly 900 homeless or disadvantaged men, women and children, in addition to providing free medical care, English classes, clothing and more. Our collaboration with the soup kitchen presented the perfect opportunity to do what we do best – change the lives of women and men in our community.

mam2

Alinea Medical Imaging’s mobile mammography helps make these events possible.

We’re grateful for community partners like YWCA of North Orange County and Alinea Medical Imaging for their support of the Komen promise of advancing the fight against breast cancer.  Without their help, we would not be able to offer services at no-cost to the to the Orange County community and encourage breast cancer awareness. We are also thankful for the opportunity to work with Loaves and Fishes Soup Kitchen and are looking forward to future events at their location.

What are you grateful for this season of giving? Share your thoughts in the comments section below.